Grief, Guilt, and Grace: A Single Mother's Journey Through Accepting an Autism Diagnosis
I woke up that morning with the kind of anxiety that hides itself behind busy hands and obsessive cleaning.
It was a gloomy Wednesday morning. I made myself a cup of jasmine green tea, my usual ritual when I wanted to feel grounded or at least have enough caffeinated energy to conquer whatever chaos life threw at me for the day. I sat quietly at my kitchen table, laptop open, waiting for the Zoom meeting to begin. On the screen would be an assessment psychologist, a school mental health specialist, my son’s preschool teacher, a speech pathologist, and a school board representative. Six tiles. Six faces. And one mother trying to prepare herself for what she thought would be an in depth conversation about speech delays.
Nothing could have prepared me for what I heard instead.
The Moment That Time Broke
I thought I was bracing for news of a mild speech impairment, a learning delay at worse. I had already witnessed my son struggle through test after test during the assessment process. I had seen the way that he couldn’t meet their milestones or understand their questions. I thought I had prepped my heart for that kind of news.
But I wasn’t ready for those words:
“We believe your son meets the criteria for an autism diagnosis.”
I don’t know how long I held my breath after that.
I don’t remember the exact words that followed, just the blur of professional voices explaining Individualized Education Plans (IEPs), special education options, therapy recommendations and support services. I nodded through tears that I could no longer hold back. My eyes were full. My brain was spinning. My heart was somewhere between cracking and collapsing.
It felt like grief.
It felt like failure.
It felt like every ounce of guilt I had been trying to suppress just got stamped with confirmation.
Where It All Started
My son wasn’t always delayed. Before all of this, he had been hitting normal milestones. I vividly remember all of the beautiful memories of him laughing, walking and beginning to talk. But at 18 months, after a joyful Thanksgiving dinner, he suddenly got sick. What began as croup, became serious fast. Within 24 hours from the time that we were enjoying turkey and football amongst family, he was hospitalized. Within 48 hours, he was placed into a medically induced coma, where his lifeless body remained for the following three weeks.
When he finally came out of it, my baby had to relearn how to do everything — how to walk, how to talk, how to swallow. That kind of trauma changes a child. And it changes a mother too.
We worked hard. We celebrated small wins. But as time went on, it became clear: language development wasn’t catching up. I enrolled him in speech therapy. I sought answers. I requested a school-based assessment for additional support. But what I didn’t expect was that this journey — his healing — would uncover something deeper.
The Diagnosis That Broke Me
After the meeting ended, I sat there in silence. Staring at a blank screen. I don’t remember closing the laptop. I don’t remember standing up. I just remember how suddenly the world felt different. Like I had walked into a new chapter without being given a chance to turn the page.
The following days were a blur.
I cried in the shower, the car, the closet…anywhere where my son couldn’t see me fall apart.
I managed to smile through our morning routines. But immediately after school drop off, I would return to my bed, close my blackout drapes and allow my newfound numbness to consume me.
My entire being felt off. I couldn’t sleep…or I slept too long.
I felt everything — and nothing — all at once.
I took an unpaid leave from work. As a single mom, I couldn’t really afford to do that, but I felt that I had to because it had become quite clear that…I wasn’t functioning. I wasn’t okay. And for the first time in perhaps my entire life, I allowed myself to admit it.
Grief, Guilt, and the Grind of Healing
There’s a grief that comes with diagnosis — not because of who your child is, but because of what you imagined their life would be. There’s guilt too, for everything you can possibly think of…for not catching it sooner, for not knowing better, for somehow thinking you did something wrong.
And then there’s grace.
It doesn’t come all at once. It comes in waves. It comes when you stop fighting and start accepting. When you learn to see your child not as broken, but as whole in a different language.
My son is still my son. Brilliant, joyful, curious, stubborn, sweet. He is not a diagnosis. He is not a label. He is a miracle with his own rhythm.
And me? I’m still learning. Still crying in the shower some days. Still researching at 2am. Still scared. Still strong. Still here.
Why I’m Telling You This
Because maybe you’re here too.
Maybe you just heard the same words. Maybe you’re hiding your tears while your child watches TV in the other room. Maybe you’re struggling to show up for work or maintain your responsibilities. Maybe you’re wondering if you’ll ever feel normal again. Maybe you think you’re failing.
You’re not.
You’re just a mother in the middle of a storm….but you’re still standing. You’re still fighting. You’re still being the best mom that you can be…and that’s what grace and power look like.
This blog, this space — SomehowMama — was created for this exact moment. For women like us. For the overstimulated, emotionally exhausted and physically depleted, beautifully human mamas doing the absolute impossible every day. Somehow.
With love,
~Jess. 🌿